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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
I had a bronco done and the sample was sent to Jacksonville, FL to the Bureau of Public Health Laboratories and grew for 6 weeks and came back with Mycobacteium Gordonae . My ct scan and xray show that most of my lungs are infected. Waiting on my doctor to let me know the next step. I think he is sending me to Shands in Gainesville, FL because it is the closer than Jacksonville. I live North West of Orlando. I thank you so much for your info and will check out these web sites asap. I am SO SCARED the not knowing and waiting is the worst. I hope someone who has had this strain will reply with some more info.
Replies to "I had a bronco done and the sample was sent to Jacksonville, FL to the Bureau..."
@jammer we all understand the fright that accompanies a MAC dx...and the shock when we learn more about the very last-century standard treatment. The good news: you will find a number of alternatives here...docs who have tried a variety of less harsh treatments that work well. Glad you're here.
They say that is what I have now after I have had MAC, taken the "Big 3", had Lung Abscess in hospital for 20 days of multiple ivs.
now they way I have Mycobacteium Gordonae and pseudomonas aeruginosa infection again. They have me on Levequin again. Which is so painful to my joints.
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I had 3 sputum tests done with two of them showing positive for Gordonia polyisoprenivorans, which I think is related to what you are saying. My specialist says we are not going to treat it with antibiotics, but increase respiratory program to twice a day as I am not ill at this time. Good luck with your journey.