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Prednisone tapering is challenging. What does remission feel like?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)Comment receiving replies
My rheumatologist answered yesterday and put me back up to 15 mg. I have to go have a blood test today to see what the actual numbers are. I feel that is fair. So much about PMR is perception and constantly assessing your body. Sometimes I feel like a poorly assembled Marionette. My shoulders especially are bothering me now. I have a very morbid imagination and my mind often goes to worst case scenario. I dread being unable to to change clothes by myself because of shoulder and muscle pain.
Replies to "My rheumatologist answered yesterday and put me back up to 15 mg. I have to go..."
I feel "poorly assembled" today. Probably too much Thanksgiving. Take those morbid thoughts captive. You really shouldn't have too much pain if you're on the right dose of prednisone. Some days are worse than others, but rarely if ever worst case. By the way, some people (15-20%...including me) have numbers in the normal range even though we have PMR. So you're right: it's not the numbers or a set taper schedule, it's us assessing our bodies and trying to find the lowest level of prednisone where we can continue to live our lives well. And that's not always easy.
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Your thoughts are like mine. It scares me alot to think this never goes away and I could be stuck not able to do various things. I have not had all-day-long pain except my fingers which don't want to work right (bad accident many years ago and I smashed all my wrist bones so that is an ongoing issue along with pmr) Hang in there, be positive as you can be, take care!🙂