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Prednisone tapering is challenging. What does remission feel like?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)
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@oldhen

Not really, just that it's an inflammatory disease and keep on with the prednisone. Thank you for the link, John. I continue to read as much about it as I can, and I was told by someone in the medical field that it's a "relatively new" disease, and there isn't an abundance of detailed information. but I haven't actually seen that statement in print. Is that true?
Thank you for your message to me.

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Replies to "Not really, just that it's an inflammatory disease and keep on with the prednisone. Thank you..."
John, Volunteer Mentor | @johnbishop | Nov 25, 2021

Hi @oldhen, Actually there is a lot of information out there on Polymyalgia Rheumatica (PMR). It is good to learn as much as you can about your condition so that you can make better decisions and ask better questions when discussion options with your doctor or rheumatologist. Here are a few sites that may help you learn some more if you like to read.

-- Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/
-- National Organization for Rare Disorders - Polymyalgia Rheumatica: https://rarediseases.org/rare-diseases/polymyalgia-rheumatica/
-- American College of Rheumatology - Polymalgia Rheumatica: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Polymyalgia-Rheumatica

One of the suggestions my rheumatolgist gave to me that was really helpful when I was trying to taper off of prednisone was for me to keep a daily pain log along with how much prednisone I took that day. This helped me determine if I should go to a lower dose on my schedule based on how my body was feeling.

Did your doctor provide any suggestions or set you up with a schedule to help you taper off of prednisone when it's under control?

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