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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
It seems my neuropathy began in my feet 15+years ago, icy cold with numbness, then progressed to severe pain ~3 years earlier. Now it’s going up my legs and maybe systemically? I can feel feel it’s ‘tightness’ it my gut and maybe all over.🤷♂️and I t’s pretty scary. I’m seeing a gastroenterologist for IBS tests, now. I wonder about yours, in gut or all over and what you feel? Are you distressed…and or how you might be controlling it?
Replies to "It seems my neuropathy began in my feet 15+years ago, icy cold with numbness, then progressed..."
Mine started and is in my feet and ankles making them so tight walking is assisted/difficult and I no longer drive. It started with tingling in the feet progressing to where it is now. My lower legs tingle and have the sensation of being cold but if I touch the skin it is not cold. My surgery was for a part of my intestines that was trapped in scar tissue and being strangled. I found it interesting you mentioned IBS. I had that for about 20 years. After the surgery it is gone even though the surgery was not related to it. It makes me wonder if IBS primed my body for this waiting for the opportunity to activate. Since small fiber neuropathy can affect the smooth muscles I find some functions different from before. No pain. I'm taking supplements, exercising and trying whatever I can that might help me get back to walking and driving. All info and suggestions are welcome as I continue to educate myself on this and will hopefully find the cause to treat it. I'm taking Pregabalin for the symptoms but that is only partially helping. I'm dealing with the rest as I don't want to take a higher dosage or more Rx. I'm taking chocolate and potato chips to treat the soul. 🙂 I'm not diabetic or overweight. Just aging and that might be the cause! In any case, it stinks. 6 weeks before this started I was walking all over a cruise ship and Alaska. That was 2 1/2 years ago. I fear there is no short answer for any of us.
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Hi @stress, I was wondering if your post was directed to me or if for @retired123?
Sometimes it's hard to know who your post is for unless you click the REPLY button below a post which lets the person know that you are replying to their post on Connect. Another way to direct your post to a member is to use their member name like I did here with you. When you click the POST COMMENT button at the bottom of the page, it normally means you are asking a question of any member or providing information for everyone.