Hello Molly @mollytracey198, Welcome to Connect. I can't begin to imagine what you have been going through. Did the 20mg prednisone provide any relief once you started taking it? It does seem like you could have picked something up in Costa Rica. Did any of the doctors mention any of the common diseases in Costa Rica?

6 OF THE MOST COMMON DISEASES IN COSTA RICA: https://borgenproject.org/common-diseases-in-costa-rica/

You have mentioned so many symptoms that like you say don't really fit with PMR. If you have seen 80+ doctors and no one seems to have a clue, have you thought about going to a major teaching hospital or health facility like Mayo Clinic that have a multidisciplinary teamwork approach to healthcare that is patient centered? I'm sorry that I have more questions than answers but it seems like you might need to see a group of specialists that work together to provide a diagnosis and come up with a treatment plan.

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.