← Return to Kidney Disease: Does treatment from Mayo produce better outcome?

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@gingerw

@colleenyoung Thank you for tagging me in to this conversation!

@codered032 I have been a kidney patient for a number of years, and have had several nephrologists. What I have to say is only my experience. You have to feel confident that the medical team working with you has your best interest at heart. Now, that may come from a teaching hospital, a university-connected hospital, or a well-known medical institute. My first nephrologist was connected to the HMO I was a patient in, and he was really good, not worrying if he stepped outside of the guidelines they gave him to follow. When he left the system to go on his own, I followed him. Eventually I changed to another nephrologist who was also very good, and helped me at the start of my current health issues. When I moved 800 miles, the next one was not as interested in my complicated case, and I switched to another dr in his same practice. She is my current dr, and shares my vision for this case I have.

I am not a patient of Mayo Clinic. My oncologist was trained and did his residency at Mayo Clinic [Rochester, MN]. During my years as a patient, what was important was to research your medical team, "interview" them if you feel the need to [to see if they fit what your vision is for care], be an active participant in your own healthcare, and speak up when you feel you have something to address.

Good luck, and I'll be waiting to hear what you have to share with me!
Ginger

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Replies to "@colleenyoung Thank you for tagging me in to this conversation! @codered032 I have been a kidney..."

Thank you for your input. Like many others, my dx of MCD was totally shocking. I was healthy, no chronic illness and no routine medications, except a few supplements. I am educating myself as much as possible about treatment options. This group is very helpful and I appreciate everyone’s contributions.

Thank you for sharing your experience with choosing a doctor. I am no longer connecting with my current doctor and will be meeting with a new doctor at Ohio State University. I have reviewed his educational background and he has posted a letter of introduction and his medical goals for treating renal diseases. I pray that this works well for both of us. He is a lot closer to my home than Mayo. Again I appreciate your sharing and support.