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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "I am in month 6 on the big 3 - I find the overall fatigue has..."
@sueinmn Also, have routine sputem tests for pseudomonas. That infection is what took my weight down fast. That does not take long to grow and you can get an answer fairly quickly. When was your last sputem test?
@sueinmn I can relate to you so well, I would forget to eat too, I would find my dinner in the microwave the next day and wouldnt have known I diddnt eat it, no apetite at all, no memory about anything,diddnt want to go out, time would disappear(3 weeks would seem like a few days) got down to 103lb and diddnt look in the mirror until one day I saw myself get out the bath and freaked out. It was anxiety and lots of us on here have had it over MAC. I got some meds and some high cal drinks from the dr which helped even though I still had bad MAC but put the weight back on, dont know if this is you or not but if so it may not be the MAC or meds. (hope I havnt told you this before) Take care Heather
@sueinmn Thanks so much for replying Sue, your advice was very helpful to me. I hope you can get your weight under control very soon. Yes agree with others -- have read in research literature that when the fight against the bugs succeeds, symptoms like the weight loss will slow or stop. My weight loss has been much smaller so far, but when I had a bad illness when young a specialist put me on glasses of sweetened condensed milk, or powdered milk with sugar, every day to help avoid losing too much weight. Healthier versions of this might use full cream milk topped up with cream and sweetened. And have plenty of honey every day. (Honey was historically used for lessening TB symptoms. You could also add a good Probiotic powder to the milk - that can help reduce the gut effects of taking antibiotics if you have it 12 hours before or after them).
@sueinmn Hello Sue. As the mac gets beaten down; your weight should come back along with your appetite. Have you discussed the weight loss with your dr?