Hi all, I am new to this forum and sure could have used it months ago. I have read through many of the posts and I am blown away by the wealth of knowledge contained here!! I have been on the Big 3 for 17 months today...I am seen my a local pulmonary doctor and after my visit with him last week, I have to decide if I want to go on the inhaled Arikayce with him managing my care or do I want a second look with someone at National Jewish Institute. I had another on bronchoscope in September and was called right away to say the infection is still present. After going over the sensitiviy results last week, it shows the infection is not immune to Rifampin, Ethambutol, and Azithromycin so far. I guess that is good news. Just wanted to say hello and thank you all for your honesty and generosity in sharing your personal journeys with this crazy lung disease.
Take care, Yaggi01