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FGFR3 levels are high any treatments?

Neuropathy | Last Active: Jul 31 10:52am | Replies (9)
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@doctorshelley

I would like to report that after 3 treatments of ivig for my sfn I have had some pain relief! I have elevated antibodies that I ordered through Wash U.

I would also like to get a reference for the current ongoing study at Mayo for this. I would like to ask some questions of the people leading the study. Can the mentor connect me? Thank you.

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Replies to "I would like to report that after 3 treatments of ivig for my sfn I have..."
Colleen Young, Connect Director | @colleenyoung | Nov 24, 2021

Shelley, that's great to hear that IVIG treatments appear to providing some pain relief. Fantastic.

I believe you may be referring to this research study being conducted by Loyola University (not Mayo Clinic).
- IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS or FGFR-3 Antibodies https://clinicaltrials.gov/ct2/show/NCT04153422

Recruitment for the study has been suspended because the principal investigator is leaving or has left Loyola University.

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kgitti | @kgitti | Apr 16 10:34pm

In addition to CIDP tests, I had a positive test for FGFR3 2020. My symptoms did not include pain but were bilateral sensory/motor neuropathy and fatigue. IVIG and now SCIG with periodic steroids arrested the advance of the disease.

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