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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@stress

Hello kindred spirits. My main health concerns are all severe: pain, anxiety, insomnia and isolation.

Health was great until early 40’s, ~30 years earlier. MECFS evolved, which is neurological from stress, significant, and progressive. It is systemic, affecting multiple brain functions including cognitive,IBS and insomnia. Then Peripheral Neuropathy severely hit in feet, it too is systemic and progressive with high pain. I think these conditions are interrelated, neurologically. I’m functional but slow, getting more and more housebound.

I’m more or less tuned into the CFSME but not so much the related conditions. I’d like to see what we share in common, dealing with the symptoms et al. ✌️

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Replies to "Hello kindred spirits. My main health concerns are all severe: pain, anxiety, insomnia and isolation. Health..."
John, Volunteer Mentor | @johnbishop | Nov 23, 2021

Hello @stress, Welcome to Connect. I think you are right in that a lot of the neurological conditions are tied together. I don't have ME/CFS but do have small fiber PN, polymalgia rheumatica, and am trying to figure out if I'm in the catagory of those with metabolic syndrome which I think is related to my neuropathy. Here's some information that I think speaks to neuropathy and ME/CFS.

Small Fiber Neuropathy (SFN) Fibromyalgia and ME/CFS Resource Page: https://www.healthrising.org/small-fiber-neuropathy-resource-page-fibromyalgia/

There are a few other discussions that you might find interesting.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

Another connection I'm trying to understand which could possibly tie in with what you mentioned is the Metabolic Syndrome -- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/

Have you tried doing any research using PubMed (https://pubmed.ncbi.nlm.nih.gov/) or Google Scholar (https://scholar.google.com/)?

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