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DiscussionJust Diagnosed with Small Fiber Neuropathy
Neuropathy | Last Active: Aug 12, 2024 | Replies (236)Comment receiving replies
Replies to "Greetings….1st time poster. As we know, neuropathy and especially SFN, can be very complex with no..."
Hello @phix16, Welcome to Connect. It can be frustrating not having a diagnosis when you know something is going on with your body. I have idiopathic small fiber peripheral neuropathy but only have the numbness which sounds similar to your symptoms and my feet seem to always be cold.
Here's some information I found about the axonal swelling that might shed a little light on the topic.
"Increased swelling ratio predicted the decrease in IENF density in patients with painful neuropathy. Its quantification could support earlier diagnosis of sensory axonopathy." --- Axonal swellings predict the degeneration of epidermal nerve fibers in painful neuropathies: https://n.neurology.org/content/61/5/631
One of the better sites I've found for learning more about neuropathy is Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
Have you seen a neurologist or did your PCP do all of the testing?