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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@dglaude First, welcome to this supportive, informative group. I've learned much here, and recommend you do the same. Do a keyword search for posts about alternative treatments to the "big 3" as many knowledgeable docs are now avoiding that old school treatment protocol...some of us have been on just one antibiotic, others have rotated, others have been on inhaled Amikicin (sp)... first, make sure your doc cultured your MAC specimen taken during your bronchoscopy to determine the right antibiotic to use on your particular strain.
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Was in to see my doctor yesterday, glad to say my culture shows no growth after 8 weeks. Have been on the Big 3, but “I” stopped that three weeks ago. They were setting up the Akylas inhaler which I turned down before the culture came back. I feel much better and have prayed many times and give God the glory. Good luck to all.