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COVID vaccines and neuropathy

Neuropathy | Last Active: 2 days ago | Replies (2172)

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@athenalee

It’s good to have affirmation of the impacts of vaccines. I hope it spawns more research and awareness among doctors. I’m fortunate my neurologist acknowledged my reaction. I know many have not had the support of their providers. I hope you find improvement in your SFN.

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Replies to "It’s good to have affirmation of the impacts of vaccines. I hope it spawns more research..."

It was gone entirely before the vaccinations. I should note that they flared my symptoms but not all my symptoms. If you don't mind a metaphor. If my symptoms were like a band, it is like the shots flared up the band - but some of the band members sat quietly. But the shots brought a couple of new members along - ones I had never heard play before. They played dully compared to the old band. Then, some of them stopped entirely. Only the new band members are still playing, and even one of them is quiet now.
I am sorry, I am a creative, and this is how my mind works.
Imagine the horror my doctors must view my descriptions of my symptoms with. Sometimes, I just get stared at. 🙂

Sorry to write you two replies but I wanted to add that all of my doctors believed me immediately about the flares - so that was good. As a person who struggled for years to get to a diagnosis, I am grateful for that. I can imagine many will not get the support of their providers.
I reported my symptoms to my immunologist, PCP, the CDC (I signed up for that after test survey), my pharmacist, and The Immune Deficiency Foundation. I felt it important to share my experience for that very reason - so many do get doubted.