I currently have iron deficiency and we are going to do an infusion next week to see if my numbers go back up. If they don't my doctor said we have to figure out why and might have to do more scopes although I just did my yearly scopes in June. I have this really bad pain in my upper arms, calfs in my legs and my hand/feet. It is getting harder to use my hands because of the pain. I am on all sorts of medications to try to help deal with it but pain is your body's signal that something is wrong. We are also doing a Pet-Ct scan because of a blood marker we found - not sure if any of this will help figure out the source of the pain which wakes me up every 3 hours at night. I have found ways to deal with it - ice, medicine, etc, but it is getting worse not better. I am not sure if it is related to Lynch or something else. Things like driving and holding on to things is getting worse - yes I can do OT but I am already doing PT for other reasons and I work full time so I hope we can find a cause for the pain. We did xrays of my hands/ankles/feet recently so maybe that will show something as well. For now I am not on the estrogen path - I didn't like the side effects. Some of them could be related to early menopause (surgically induced). I follow at Mayo in Rochester - where I am going to be doing all my Lynch screenings.