← Return to Prednisone tapering is challenging. What does remission feel like?

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@virginiaj

I have read many opinions on tapering and there is a separate thread about it. There is a method that is called the English method that someone describes in detail. Basically, you keep alternating old dose and new dose until you are on new dose. This is my 3rd bout of PMR, so I have tried lots of methods. I have found that the lower the dose, the harder it gets to lower it. I used to work with endocrinologists and they told me that at the low doses, your body has been treating the prednisone as a replacement and it takes awhile for the adrenal glands to kick in production again. Currently, I will be on prednisone 2 years next month, have been reducing from 4 to 3 mg for the past 3 weeks. I am now taking 3 mg for 2 days, then 4 for one day. I always either split my dose of prednisone or take it all about 6 PM with my supper. I do get stiffness in the evening, but I am a morning person and feel good in the AM with the prednisone in the evening. My rheumatologist is good with all this and my inflammatory markers are staying down. I feel I will get to 3 in a week or two and then stay there for at least a month before trying to decrease again. Patience and a physician who listens is the key. The first time I had PMR, I was on prednisone 2 years, followed by remission of 12 years, the second time I was off in 10 months, but the PMR recurred big time 8 months later, but in retrospect, I think it was not really gone as I had all sorts of strange symptoms which I attributed to other things. This time I am taking my rime

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Replies to "I have read many opinions on tapering and there is a separate thread about it. There..."

Hi @virginiaj, Sounds like you have a great plan for tapering prednisone. My first bout with PMR tapering was 3-1/2 years. The last six months going back and forth between 1 mg and 1/2 mg dose. It does get harder to taper at the lower dosages.

Re: taking your prednisone in the evening, do you have trouble sleeping? My rheumatologist suggested I take it as early as possible in the day because I have had trouble sleeping.

For the past week I’m tapering at 4MG every other day but have pain in my shoulders at night. I’m wondering if I should try shifting my dose to the afternoon or evening. Anyone have thoughts on this?

Does anyone know where I can find more information about the “English method” of tapering? I’m at 4 mg and stumbled onto alternating days 4/0mg by accident, and another person’s experience in this blog. it’s been working great for a couple weeks but now my shoulders are really painful. Not quite sure how to approach it.

I’m at a cross road because I love how the rest of my body feels (especially my mental state) but the shoulder pain is pretty debilitating.