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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Did the doctor say the ringing in the ears would go away or is it a side effect that is permanent ? I feel it is the Azithromycin that cause lot of side effects., I was off this medicene for over a week and had no side effects. Now that I am back on it I have ringing ears and feel the Big 3 within fifteen minutes after taking them.. The leg pain is awful at night which I have not read where anyone else has this problem .I do have appointments for my ears and eyes this coming week.Praying the ears are not permanent.I pray for all of us that have this disease ,
Summer 33
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@summer33 I have seen only my GP/primary carer. Having difficulty getting in touch with the Specialist because I am a 'public hospital' patient. (In Australia, many people on lower incomes go to public hospitals because they are cost free. But like the NHS in England you can't choose your hospital doctor). I will see the mycobacterial specialist at an appointment in 10 days time.
Yes Azithromycin can cause hearing problems and has some bad side effects but so do the other drugs in the big 3. But the Azithromycin is probably the most important drug for fighting this NTM.
For me, I was just a bit shocked to develop it so early in my treatment. However, so far the tinnitus I have is there but not too bad -- it gets a little bit worse as the day goes on. If it remains and doesn't go away, I can accept it as the price to pay to treat this awful illness. (But no, I definitely don't want any of the serious side effects that this drug or the others can cause! Please not for me, or for any of us -- I pray for that. The smaller side effects I will do everything I can to accept).
Ethambutol and Rifampicin / Rifampin (both in the big 3) can cause leg pain.and eyesight problems. Tell your doctor or specialist if you have them. Good luck to you, and to all of us. Annie