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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@america Glad you're feeling better now Rita. Was the coughing and sore throat a flare up of the NTM? I get a very sore throat when I have had the NTM exacerbations. What meds are you taking for MAC?
Yes Sjogrens is a hassle. Do you use the mouth gel -- In Australia it's called Oral Care or Oral Balance gel. I do on and off. But yes its very hard when you're sick with a bad sore throat.
But you're not alone. Hugs, Annie
Replies to "@america Glad you're feeling better now Rita. Was the coughing and sore throat a flare up..."
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Hi anniepie, I took the big 3 about 3 years ago. And I was doing good with no meds after that for about 2 years. This year was not good to me I got sick a lot and I found this group that actually saved me. Windwalker is amazing! She told me about Mayo Clinic and I am being treated there. I was on Tobramycin for almost 2 months and I started with the sore throat and I had to stop. So I’m not on any meds now. But I will be starting something different soon. I may be staying azithromycin not quite sure until I speak with my doctor. And yes I did use it and got ringing in my ears not constantly it would come and go. I wish I could help. Hugs!!! Hang it there it’s a long journey but we are doing it. Rita