Numbness in extremities and in urinary tract?

Posted by kymc @kymc, Nov 20, 2021

Hi all,

Kym here posting for my 88 yo mom. She has had numbness with very little pain. No longer drives. Struggles with balance. Can walk with a cane (or two) on flat ground for short distances. She also has urinary incontinence and has ne feeling of needing to go nor does she have any pain when she gets a UTI. She does have diabetes, sleep apnea, shortness of breath (most likely due to deconditioning), kidney disease (3B), etc. Does anyone have any suggestions, in addition to the advice she has to lose weight, be more active, get diabetes under better control? I'm thinking specifically for the urinary tract numbness as well as anything else y'all have to offer.

Blessings all around!

Kym

Interested in more discussions like this? Go to the Neuropathy Support Group.

@kymc
Neurogenic bladder to my knowledge has no cure unless whatever caused it is effectively delt with and I doubt a cure to Neuropathy is coming any time soon.
There are external urine collection machines available for home use now . My Mom was using one in the hospital and it worked great. I believe they cost around $500 give or take and I understand they they are covered by Medicare.
Best of luck to you,
Jake

REPLY

Hi @kymc and welcome to Mayo Clinic Connect. I don't want to assume a condition in your mother, but I did want to share some information about Cauda Equina Syndrome which her symptoms are quite similar.

Here on Connect: Cauda Equina Syndrome: Pain, symptoms, management & prognosis: https://connect.mayoclinic.org/discussion/cauda-equina/

Here on Connect: Cauda equina syndrome (CES): https://connect.mayoclinic.org/discussion/my-story-in-short/

"Numbness around the urinary tract, perineum, buttocks and anus are all symptoms of cauda equina syndrome."
It's Numb When I Go to the Toilet: https://www.caudaequinasolicitors.co.uk/medical-negligence-claims/its-numb-when-i-go-to-the-toilet/

I think addressing one thing at a time might be a good start. Has she seen a doctor about the numbness?

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@amandaa

Hi @kymc and welcome to Mayo Clinic Connect. I don't want to assume a condition in your mother, but I did want to share some information about Cauda Equina Syndrome which her symptoms are quite similar.

Here on Connect: Cauda Equina Syndrome: Pain, symptoms, management & prognosis: https://connect.mayoclinic.org/discussion/cauda-equina/

Here on Connect: Cauda equina syndrome (CES): https://connect.mayoclinic.org/discussion/my-story-in-short/

"Numbness around the urinary tract, perineum, buttocks and anus are all symptoms of cauda equina syndrome."
It's Numb When I Go to the Toilet: https://www.caudaequinasolicitors.co.uk/medical-negligence-claims/its-numb-when-i-go-to-the-toilet/

I think addressing one thing at a time might be a good start. Has she seen a doctor about the numbness?

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Can Cauda Equina Syndrome cause neuropathy? Can it be part of neuropathy or is it a completely separate condition? Can the "down there" numbness be part of Small Fiber neuropathy since SFN can affect the smooth muscles? So many questions about neuropathy but answers are scarce. Thank you for info!

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@retired123

Can Cauda Equina Syndrome cause neuropathy? Can it be part of neuropathy or is it a completely separate condition? Can the "down there" numbness be part of Small Fiber neuropathy since SFN can affect the smooth muscles? So many questions about neuropathy but answers are scarce. Thank you for info!

Jump to this post

@retired123 - This might help explain:

"Can cauda equina cause nerve damage?
Cauda equina syndrome (CES) is a particularly serious type of nerve root problem. There is pressure on the nerves at the very bottom of the spinal cord. The pressure on the nerves stops the nerves from working properly. If the pressure is not treated quickly then CES may cause permanent nerve damage."
--- Cauda Equina Syndrome: https://patient.info/bones-joints-muscles/back-and-spine-pain/cauda-equina-syndrome

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I was diagnosed with it CAUDA EQUINA at a pain clinic and then spine clinic quickly remove the term and denied any discussion of it A big cover up I believe. I have all of,the symptoms which are progressively giving me problems

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@retired123

Can Cauda Equina Syndrome cause neuropathy? Can it be part of neuropathy or is it a completely separate condition? Can the "down there" numbness be part of Small Fiber neuropathy since SFN can affect the smooth muscles? So many questions about neuropathy but answers are scarce. Thank you for info!

Jump to this post

I have been told that it is my neuropathy that is responsible for my CAUSA EQUINA. I CAN NO LONGER WALK

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This is a serious concern. I advise getting a second opinion ASAP. If you can be seen at the Mayo that would be best.

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