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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 1 day ago | Replies (9325)Comment receiving replies
Hi annipie, I am so sorry to hear you hear you have Sjogrens. It’s so difficult to eat and swallow and the dryness all over my body is insane. The most difficult thing for me is eating without saliva. And with NTM it’s become a daily struggle. I was sick for the last six weeks coughing and sore throat... it was so hard to even drink water. But today I feel a bit normal and like my self again and for that I am overjoyed. I still have a little soreness in my throat but I’m not going to complain. I wish all the best. Please keep in touch Rita.
Replies to "Hi annipie, I am so sorry to hear you hear you have Sjogrens. It’s so difficult..."
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@america Glad you're feeling better now Rita. Was the coughing and sore throat a flare up of the NTM? I get a very sore throat when I have had the NTM exacerbations. What meds are you taking for MAC?
Yes Sjogrens is a hassle. Do you use the mouth gel -- In Australia it's called Oral Care or Oral Balance gel. I do on and off. But yes its very hard when you're sick with a bad sore throat.
But you're not alone. Hugs, Annie