I already had a diagnosis of Dermatomyositis with MDA5 antigen and ILD and I wanted to be seen at Mayo to get a second opinion on my treatment options. My Rheumatologist wanted me to start Rituximab Infusions. After researching, I saw that there are some serious side affects with Rituximab, so I wanted to get another opinion on my treatment options. I saw a Rheumatologist and Pulmonologist at Mayo. I did a Pulmonary Function Test and six minute walk, I also had a CT Chest scan. The PFT and CT scans were compared to my last ones in April. The Rheumatologist and Pulmonologist at Mayo determined that I had the correct diagnosis, and my lung function was stable and a little improved since my last ones in April. Praise the Lord! So my current treatment was working, so Mayo doctors recommended I continue with my current treatment, and have PFT every 3 months. Mayo Doctors also commented that I had a great health care team. Who quickly and correctly diagnosed me, and started aggressive treatment. That gave me more confidence and appreciation for my doctors. I left the Mayo Clinic with HOPE!
Kathryn