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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@america Hi america, me too - I have Sjogrens too -- dryness mainly affecting my mouth and less my eyes. I've heard it can be one thing predisposing us to NTMs because it causes immune dysregulation, meaning not just an overactive immune system but can go low as well. I wish you good luck and hope you feel better soon
Replies to "@america Hi america, me too - I have Sjogrens too -- dryness mainly affecting my mouth..."
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Hi annipie, I am so sorry to hear you hear you have Sjogrens. It’s so difficult to eat and swallow and the dryness all over my body is insane. The most difficult thing for me is eating without saliva. And with NTM it’s become a daily struggle. I was sick for the last six weeks coughing and sore throat... it was so hard to even drink water. But today I feel a bit normal and like my self again and for that I am overjoyed. I still have a little soreness in my throat but I’m not going to complain. I wish all the best. Please keep in touch Rita.