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← Return to Multiple autoimmune diseases
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Autoimmune Diseases | Last Active: Nov 23, 2021 | Replies (76)
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Hello @petuniamom567 How terribly disappointing to be turned down by Mayo Clinic. I’m sure you had your heart set on getting some answers. Unfortunately, Mayo is not able to see everyone. Many times they feel that the patient can get good care at home. It can be very difficult to accept, but it’s true.
You said that your underlying disease is autoimmune, but that you have other problems going on and no one can figure them out. You would probably like a team of doctors? Have any of your doctors explained why they can’t do this for you?
I would really like to see you get some help. Is there a university hospital near you that might be able to provide a team approach?
Replies to "Hello @petuniamom567 How terribly disappointing to be turned down by Mayo Clinic. I’m sure you had..."
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team is definitely the answer. no teamwork here. patient has to be organizer and keep track of what's going on. means many phone calls. few doctors call back. triage nurses do. they're not always up on all the meds. doctors should be in contact with each other online so one knows what the other is doing and why. that system doesn't exist here. should exist everywhere. so, having many diseases at once is a challenge. tiring and time consuming.