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Facial Swelling - no diagnosis
Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)Comment receiving replies
I’m so sorry you are experiencing this as a 17 year old! I’m having the same symptoms. I’m in the midst of working with a Rheumatologist to find answers and so far nothing. I went the same route, allergy testing etc and no cause found there. I’ve been to an eye doctor to see if it’s eye infections, no. Dermatologist as I do have Rosacea but no answers there either. Keep me posted if you find anything new and I’ll do the same.
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Hello @ginabee1 and @lucamckinnon, Welcome to Connect. I’m glad you both found Connect and I’m hoping another member with similar symptoms will see your post and respond. There are so many autoimmune conditions out there that it can be a struggle getting a diagnosis and treatment that helps.
@ginabee1, you mentioned you are in the process of working with a rheumatologist. Can you provide an update if you find any new information or treatments that help you?
@lucamckinnon, I'm also sorry that you have to deal with the facial swelling at a young age. I'm sure your parents are concerned and frustrated as well. Is it an option to seek help at a major teaching hospital or health facility like Mayo Clinic that uses a multidisciplinary teamwork approach for healthcare?
More information on multidisciplinary teamwork, physician-led governance, and patient-centered culture drive world-class health care – https://collections.nlm.nih.gov/catalog/nlm:nlmuid-101537958-pdf