@anniepie Hi Annie. I feel weird saying to newcomers; "Welcome to our group." Nobody wants to be in our group; but, here we are. I do not mind at all sharing with you who I see at Mayo. I owe him my life. His name is Dr. Jack Leventhal. He is located at the Mayo in Jacksonville. I feel certain that you could visit any Mayo (there are 3 in the U.S.) and all of their drs are top notch; no matter who you see; you would be in good hands. They only hire the best. I am sorry that you feel so bad right now. With the right treatment, I think you will feel. & get better. I can tell you this; we all need to keep a hard copy of our lab reports. Those reports are so important. You will be able keep track WHEN you were infected, the exact SPECIE of your infection, and a record of your suseptibility test - (what drugs work against your strain of mac.) I also keep a record of travels with that lab file. Of people I have stayed with too in my travels. Why? Because some of my friends and family that I stay with live in older homes and may have molds, etc. in their environment. For example, I picked up a black mold in my lungs after visiting a good friend of mine in Va. She was renting a place that I learned later had a mold remediation issue. My point is, by keeping records, you can pretty much track your active infections and learn where you catch them. Then, you learn how to avoid them. I would like to learn more about what you know so far with your condition; if you are ok with that. That way, I can try to guide you in what you should ask your dr to make sure that you have a knowledgeable and active part in your recovery.