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Has anyone else been diagnosed with an endolymphatic sac tumor?

Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)
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@scottjg984

Hey I know you posted this two years ago but I had the symptoms minus the face spasms u mentioned for a year starting last year the hearing loss had been here way longer smd my Mri results are pointing to they think I have the same as you hi did surgery go are u back to normal now ? I've to go back in march for further scans I asked could they remove it and he said it would make it worse so don't understand what this means for me

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Replies to "Hey I know you posted this two years ago but I had the symptoms minus the..."
Amanda Roe | @amandajro | Nov 19, 2021

Hello @scottjg984 and welcome to Mayo Clinic Connect. I can see you are interested in connecting with the member who originally posted this discussion so I wanted to show you a way that will notify her of your interest. If you use the "@" + her handle, she will be notified per her settings. In this case, you would use @kayjaylauren to see if she would be willing to come back and provide an update.

Have you asked what it means for you if they do not remove the tumor?

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