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Microscopic Colitis: How to you keep it under control?
Digestive Health | Last Active: Oct 21, 2023 | Replies (33)Comment receiving replies
@malangjohn I am so sorry to hear that you are dealing with ulcerative colitis! Are you feeling better? Do you still bleed?
I get the impression that you eventually were diagnosed and treated by a gastroenterologist.
Let me give you a link to Mayo Clinic's presentation on ulcerative colitis:
https://www.mayoclinic.org/diseases-conditions/ulcerative-colitis/symptoms-causes/syc-20353326
It also seems to be an autoimmune disease like collagenous colitis, but it causes ulcers to form in the lining of your large intestine. In contrast, collagenous colitis and lymphocytic colitis have damage under the surface, not visible but seen on biopsy.
It is definitely important to learn about life style, diet and nutrition. You want to be as healthy as you can be to keep the illness under control.
It does not sound as if you have gotten much information from your doctor's office.
Would you have the opportunity to see gastroenterologists at a large university medical center or even Mayo Clinic?
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Thanks for replying.
Yes so I have bleeding recently so the gastroenterology department here in South of Sweden increased my dose of pentasa(mesalazine) however I still feels like I'm not getting better. I tried to contact them and they gave me time 3 months. Which I feels is so frustrating even though they aren't the one that diagnosed me. It was in another country (my home country), I took my medical records with me to show them that I have been diagnosed with Ulcerative Colitis and I need help. The only thing they did is took blood and stool samples and confirmed that there inflammation. No diet plan or how to live with disease and not even investigate it further.
A month ago it gotten worse and they only increased the dose which had been prescribed by the doctor in my home country.
I have started researching myself about this disease and came across this platform which I am very grateful for this community. Helping out and listening to the people and providing them a good direction.
Regarding the possibilities to see doctors somewhere else yes I am open to it. I have actually booked online appointment with my home country Doctor to get more information about it. I have appointment in couple of days, hopefully I will get some helpful information from them.