← Return to Aromatase Inhibitors: Did you decide to go on them or not?

Discussion
Comment receiving replies
@sequoia

Thank you Kate. Information is never more than o want to know. 🙂 I do not have an Onco Type number, so I really do not have a feel for my risk of reoccurrence. When I asked oncologist, he just said they did not do it. 🤷‍♀️ Knowledge is power and we have to advocate for our own health and well being. I was concerned that the same dosage of Anastrozole (1mg) was given to everybody - a stage 4 mastasized (sp) cancer patient & one that had DCIS, no nodes involved and had a mastectomy. Also a 250 lb woman snd a 150lb woman. Seems like the treatment/doses should be different, but all cancer patients are treated as a One Size Fits all. 🥲 I pray for you. Please keep us informed as to how you are doing. Thank you Kate for the information. It appreciated.

Jump to this post


Replies to "Thank you Kate. Information is never more than o want to know. 🙂 I do not..."

I would say, let me be the guinnea pig on the natural AI's. If everyone is ok with it I will report exactly how it goes including my blood estradiol levels before and after...I'm not stupid here, and I write medical research grants in the auto-immune space; so I don't want anyone making their decisions based on my particular set of circumstances which are unusual. Most people have not suffered an assault like I did in 2006 (attempted rape attempted murder), and most don't have PTSD as a diagnosis so apples to apples comparisons are difficult.

That said, I did google and don't have time at this moment to go back and find the clinical trial, that they excluded in the Tamoxifen and some of the AI trials anyone with a psychiatric diagnosis from the trials. I interpret that to be knowledge that people like me should be warned of the potential for a psychiatric break of sorts prior to taking them. That said, my Oncologist is highly regarded but due to reasons beyond his control there is no dialogue.

My breast cancer surgeon, Dr. Victor Zannis who is highly regarded in AZ told me that before COVID 19 there were 20% of the positive breast cancer cases than he's seeing now due to people avoiding mammograms/ultrasound because they are afraid to go near a medical facility with COVID patients in it. So he's seeing 5x the number of cancer patients now, with much more aggressive or advanced cancer that is much harder to treat. I think that is a consistent theme across different disease states as a direct result of COVID 19.