Hi @mtoyne2021 I’m in the process of writing a longer reply to you and just wanted you to know that I’ve seen your message. I’m away from my computer right now, so bear with me I’ll be back in a hour or so. I’m so happy you’ve reached out to Connect. The support here is never ending. ☺️

Hi @mtoyne2021 Golly, my heart stopped a little when I saw your posting. Your daughter is only 19 and having to face this enormous life challenge. Children should never have to suffer from cancer. So I’m truly sorry she has to go through all of this, along with you and your family. It definitely ‘takes a village’.

I can promise you, that she could not be in better hands than the BMT teams at Mayo Clinic. She’ll hear this over and over…she is married for life to this amazing group of doctors, NPs, nurses and staff. They will be her lifeline and extended family. I’m 2.4 years out from AML/Transplant and I still receive regular communications with my doctor and team members, along with appointments at the clinic on a regular basis.

Never hesitate to call on any one of them via portal or directly with numbers for Station 94 (the team providing care the first month) and the transplant center. These numbers will be given to you when your daughter has her instructional courses. We’ll talk more about this as the date draws nearer for transplant.

In the meantime, finding housing… When your daughter has her transplant, it will be an outpatient procedure. Initially she’ll be in the hospital for only a few days pre-transplant and the day of transplant. Usually the day after transplant, she will be able to return to the hotel or wherever you’re staying. She’ll be expected to report to the clinic daily for blood tests, possibly infusions for anti-fungal meds and magnesium so you’ll want to be close.

Having a place connected to the subway is really convenient as you can borrow a wheel chair from the clinic to use while you stay. The first week or so your daughter will be weak and most likely need that chair. No worries, she’ll feel like a princess as she rides around to and from her appointments.

For my extended “vacation at Club Med”, my husband and I stayed at The Marriott Residence Inn. It’s connected to the clinic via the tunnel (subway). We had a 2 bedroom, 2 bath suite with a full kitchen, refrigerator, dishwasher, stove/oven, microwave. There are single bedrooms available. They are all suites though so even a one bedroom has sitting area with a sleeper sofa and a full kitchen.
Seeing that you’ll be there for several months, many hotels, including the Residence Inn, have leases whereby the rates are less and you don’t pay local and county room tax.
Check with your daughter’s insurance. Often they pay for a significant portion of lodging.
https://www.marriott.com/search/findHotels.mi
Lodging around the clinic is plentiful for transplant patients. One of my fellow mentors,who had a liver/kidney transplant, stayed at the Gift of life.
This is her reply to another member just yesterday. https://connect.mayoclinic.org/comment/654424/
https://gift-of-life.org/
There are a number of VRBO homes nearby https://www.vrbo.com/vacation-rentals/usa/minnesota/rochester/mayo-clinic
Below are links to the clinic’s guides for hotels, what to bring, and the concierge services. Concierge is invaluable in helping to find lodging and answer questions you might have.
https://www.mayoclinic.org/patient-visitor-guide/minnesota/hotels-lodging
https://www.mayoclinic.org/patient-visitor-guide
https://www.mayoclinic.org/patient-visitor-guide/preparing-for-your-visit
https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
https://www.vrbo.com/vacation-rentals/usa/minnesota/rochester/mayo-clinic

When your daughter meets with the transplant team, she’ll also be assigned a social worker. They will be another outstanding source for lodging, financial concerns and emotional needs during transplant.

I know I tossed a lot of information out for you. Please take your time to narrow things down and we’ll go from there.

Your daughter has gone through her Induction phase of chemo for AML. So this will be an important BMBX for her. (Bone marrow biopsy and exam). Because her transplant will be a few months out, don’t be surprised if, after Consolidation, that she’ll need another round of maintenance chemo to keep her in remission until right before transplant. Much easier than Induction!
Your daughter is young and strong! She’s going to come out of this feeling invincible. I’m going to be 68 in January and I feel like I’m in my 20s!

How is she handling everything? And, how are YOU doing? Being the caregiver is incredibly stressful and emotional.

I also wanted to add, sometimes younger cancer patients have a difficult time relating to older patients facing the same illness. If your daughter would like to have conversations with fellow members her own age we have a group just for her. https://connect.mayoclinic.org/group/adolescent-young-adult-aya-cancer/

@mtoyne2021, I saw mention of Gift of Life House. I am a liver and kidney transplant recipient. My husband and I lived there for 13 weeks in early 2009 before and after my transplant. It was a perfect match for us since we were far from family and friends. We found it to be a place of hope and compassion and healing. It is clean and welcoming with private bedrooms and bathroom. Patients can also have labs drawn there by an arrangement with Mayo. If I can be of assistance, I'm here.