← Return to Lichen Sclerosus: Any other women dealing with this disease?

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@gingerbear22

Update. I had an appointment with my dermatologist. Unfortunately the appointment was only for annual full body visual scan for moles. She was not prepared to discuss the lichen. When I disrobed you could see on her face her surprise at the extent of my discoloration. She let me know she’d be researching, talking to my rheumatologist, and perhaps my GYN and get back to me. Another term she introduced is morphea (localized scleroderma). I Googled and found images that resemble the look of my torso. Stay tuned. Oh, I asked about photo therapy and she says she knows of no equipment in this town . . . but was not resistant to researching further.

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Replies to "Update. I had an appointment with my dermatologist. Unfortunately the appointment was only for annual full..."

Kate, has a follow up appointment been scheduled to talk specifically about morphea (localized scleroderma)?

I also was diagnosed with morphea (inner thighs) just as I was being treated for lichen sclerosis. At first I was told thge two were not related, but since then I learned that it's not unusual to have both although it's possible to have one or the other alone,

I am one of the fewer number of men with (proven) LS and I appreciate all the information I learn fro patients and the Mayo Clinic experts.