← Return to (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS

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@windwalker

@xfirerose, Hi. I read up about CVID. Gosh girl, that is a rough thing to have. I would imagine having to go in for your three week dose of immunoglobins is a pain in the neck, but thank goodness you have it. I was reading about the freaky genetics of it. That it can be a hit or miss thing genetically, and sometimes have the gene but no symptoms or illness. Sounds pretty fickle to me. Are you able to also be on maintenance antibiotics to keep the lung infections (mac & pseudo) at bay?

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Replies to "@xfirerose, Hi. I read up about CVID. Gosh girl, that is a rough thing to have...."

I tried the big 3. I did well on the azithromycin. I had vision problems on one drug. I got a bad gastrointestinal infection from the other. So my pulmonologist decided to send me to UCLA for alternative treatment. The MAC is spreading pretty fast now.