← Return to (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS

Discussion
Comment receiving replies
@xfirerose

YesI do get immunoglobulins for my CVID. Not sure it is concentrated, probably. I heard it takes many donors for one treatment. I get three small glass bottles through a port in my chest every 3 weeks. It has substantially improved my quality of life and extended my life. It was hoped that it would help me fight this MAC infection. I believe it has slowed the progression.

Jump to this post


Replies to "YesI do get immunoglobulins for my CVID. Not sure it is concentrated, probably. I heard it..."

@xfirerose, Hi. I read up about CVID. Gosh girl, that is a rough thing to have. I would imagine having to go in for your three week dose of immunoglobins is a pain in the neck, but thank goodness you have it. I was reading about the freaky genetics of it. That it can be a hit or miss thing genetically, and sometimes have the gene but no symptoms or illness. Sounds pretty fickle to me. Are you able to also be on maintenance antibiotics to keep the lung infections (mac & pseudo) at bay?