1. < Breast Cancer

Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

katehanni | @katehanni | Nov 18, 2021
In reply to @brinacarmen "Oh ok I see list here ! I also take DIM & turkey tail" + (show)
@brinacarmen

Oh ok I see list here ! I also take DIM & turkey tail

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And there are a long list of other natural AI's that are included in my treatment plan i.e. Grape Seed Extract, Chrysin, DIM, white button mushrooms, Quercitin, Stinging Nettle Tea etc.

Are you taking the DIM and turkey tail on top of a prescribed AI?

REPLY
1 reply
katehanni | @katehanni | Nov 18, 2021
In reply to @katehanni "Well I just came up with a thorough list, with citations and documents which I uploaded..." + (show)
@katehanni

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

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PS: In my research I had to look at body builder forums on Reddit and other forums to acquire the information on different natural AI's. So odd, but true that Body Builders want to lower their estrogen to increase testosterone so they are clamorous of any news of accessible AI's...or are trying to find the prescription AI's...which is probably a black market thing. But that's where I found the most available listings of different natural AI's to then research and see if they truly were AI's and if they had been trialed.

Obviously, something growing naturally, is not going to get big money behind a trial as it's already available to all if they know what they are looking for!

REPLY
1 reply
brinacarmen | @brinacarmen | Nov 18, 2021
In reply to @katehanni "And there are a long list of other natural AI's that are included in my treatment..." + (show)
@katehanni

And there are a long list of other natural AI's that are included in my treatment plan i.e. Grape Seed Extract, Chrysin, DIM, white button mushrooms, Quercitin, Stinging Nettle Tea etc.

Are you taking the DIM and turkey tail on top of a prescribed AI?

Jump to this post

I was but now I’m off tamoxifen until January when she wants to try another horrible drug But I’m not stopping the natural ones and going to look into the other ones you’re taking !

REPLY
1 reply
brinacarmen | @brinacarmen | Nov 18, 2021
In reply to @katehanni "PS: In my research I had to look at body builder forums on Reddit and other..." + (show)
@katehanni

PS: In my research I had to look at body builder forums on Reddit and other forums to acquire the information on different natural AI's. So odd, but true that Body Builders want to lower their estrogen to increase testosterone so they are clamorous of any news of accessible AI's...or are trying to find the prescription AI's...which is probably a black market thing. But that's where I found the most available listings of different natural AI's to then research and see if they truly were AI's and if they had been trialed.

Obviously, something growing naturally, is not going to get big money behind a trial as it's already available to all if they know what they are looking for!

Jump to this post

Exactly !!!!!

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katehanni | @katehanni | Nov 18, 2021
In reply to @brinacarmen "I was but now I’m off tamoxifen until January when she wants to try another horrible..." + (show)
@brinacarmen

I was but now I’m off tamoxifen until January when she wants to try another horrible drug But I’m not stopping the natural ones and going to look into the other ones you’re taking !

Jump to this post

I just wanted to note that in my case, while trying the exemestane, I added grape seed extract and it excacerbated my bone and joint pain. When I stopped the exemestane and continued the grape seed extract I had the bone and joint pain but milder. I felt that informed me that the Grape Seed Extract was having an impact...

REPLY
1 reply
brinacarmen | @brinacarmen | Nov 18, 2021
In reply to @katehanni "I just wanted to note that in my case, while trying the exemestane, I added grape..." + (show)
@katehanni

I just wanted to note that in my case, while trying the exemestane, I added grape seed extract and it excacerbated my bone and joint pain. When I stopped the exemestane and continued the grape seed extract I had the bone and joint pain but milder. I felt that informed me that the Grape Seed Extract was having an impact...

Jump to this post

That makes sense !! Good to know. Thank you !

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katehanni | @katehanni | Nov 18, 2021

I really like this blog spot. Some of the others will not allow any talk of natural AI's which unfortunately I'm relegated to due to lack of tolerance or toxicity to the current AI's. This blog is the best! I am worried that we moved to an area that has a horrible level of healthcare, no capacity due to rapid influx of residents and lack of medical care...I'm hoping now that I've sent the request for appt at Mayo in Phoenix that I can get in soon. I just noticed that I'm losing weight again without trying and just feeling unwell generally and I don't know if it's detox from the Letrozole or if I've had cancer appear as a distant recurrence (had mammogram/ultrasound follow-up last week and nothing showed up)...it's just so unnerving when you've had cancer it's like for me everything now has a different color to it i.e. I assume it's cancer not a common cold or headache or UTI...anyone else feel that way?

REPLY
2 replies
sequoia | @sequoia | Nov 18, 2021

Kate, I so appreciate your information on Natural AIs. I’m noting info. I was on Anastrozole for 2 years and a month ago stopped, due to pain and overall serious ill feeling. A few week off the med the ill feeling lifted but the pain is still with me and a week ago I developed a trigger thumb. How long / over what time had your tried the different AIs?
Blessings to you & thank you for the information. This blog/forum truly is the best.

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1 reply
Mentor
Chris, Volunteer Mentor | @auntieoakley | Nov 18, 2021
In reply to @katehanni "I really like this blog spot. Some of the others will not allow any talk of..." + (show)
@katehanni

I really like this blog spot. Some of the others will not allow any talk of natural AI's which unfortunately I'm relegated to due to lack of tolerance or toxicity to the current AI's. This blog is the best! I am worried that we moved to an area that has a horrible level of healthcare, no capacity due to rapid influx of residents and lack of medical care...I'm hoping now that I've sent the request for appt at Mayo in Phoenix that I can get in soon. I just noticed that I'm losing weight again without trying and just feeling unwell generally and I don't know if it's detox from the Letrozole or if I've had cancer appear as a distant recurrence (had mammogram/ultrasound follow-up last week and nothing showed up)...it's just so unnerving when you've had cancer it's like for me everything now has a different color to it i.e. I assume it's cancer not a common cold or headache or UTI...anyone else feel that way?

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I think we all feel this way, and in my area the healthcare is mostly a joke. I travel an hour or three depending on what we need for almost all care. The first several years I was afraid of everything but not wanting to see a doctor for anything. Now, I am afraid of everything and the doctors don’t want to see me. Go figure. My oncologist is amazing, an hour away.
I believe we can all take whatever works best for us, but we do have to be careful about what we promote here. I was very surprised at how many people read these threads, who do not ever comment. We wouldn’t want someone to read our post and think it was ok to take something not helpful or even harmful to them. It is our responsibility to think of the community as a whole.

REPLY
1 reply
brinacarmen | @brinacarmen | Nov 18, 2021
In reply to @katehanni "Well I just came up with a thorough list, with citations and documents which I uploaded..." + (show)
@katehanni

Well I just came up with a thorough list, with citations and documents which I uploaded here:

Yes and you will see two key things: A whole host of supplements that are natural AI's and an entirely new diet meant to starve cancer by creating an environment in the body where cancer cannot survive. An alkaline Diet as opposed to an acidic diet, primary whole raw vegetables and alkaline reverse osmosis water. My hope is that by stacking up all of the natural AI's together, as my naturopathic MD has done, that will give a better aromatase inhibition than taking nothing since I cannot tolerate the AI's. The list will have a few citations (sorry I'm slammed at work) and will contain all the natural AI's plus natural immune boosters and dietary changes.
SuperSmart Natural Anti Aromatase Support: The AI's in that supplement which is prescribed in France, and effective according to the French cancer mortality tables are: See the attached photo of the label for this product. It's in French so I'll break down what each thing is:
- Chrysin: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7063143/ , DIM https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5059820/ ,
- GrapeFruit Extract: https://www.nature.com/articles/s41598-021-86599-z Zinc,
- Vitamin D (which in low levels causes increased breast cancer risk) https://themenshealthclinic.co.uk/using-natural-products-to-control-oestrogen/ there are citations within this UK article,
- "liberal Green Tea and Stinging Nettle Tea" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074486/,
- Flax Seed (cited in above link) and many more see the label attached. Then whole raw flax seeds ground up (aromatase inhibition) for the best quality.
- Melatonin for my type of breast cancer: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2778514/#:~:text=Melatonin%20reduces%20the%20development%20of,inhibits%20aromatase%20activity%20and%20expression.
- Turkey Tail Mushroom, who's active ingredient (PSK) that is prescribed to every cancer patient in Japan and hey have 4% lower mortality from cancer than the US. The clinical trial was small but here it is: https://bastyr.edu/news/general-news/2012/11/fda-approves-bastyr-turkey-tail-trial-cancer-patients
- White button Mushrooms as AI's:https://pubmed.ncbi.nlm.nih.gov/16740737/ I know there is a clinical trial but this article is just affirming what the prior trials showed. Grape Seed Extract: https://pubmed.ncbi.nlm.nih.gov/16740737/

Jump to this post

OMG !!! You’re an ANGEL !!!! You’re so busy at work and still managed to share !!!!! Thank you !! Sooooooooo Super Much !!!! Blessings and Radiant Health to you !! I love all this info !!!!

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