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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
windwalker here is a link that briefly explains CVID. I get immuniglobulins every 3 weeks like Victoria in the story. Now that I have bronchiectasis and MACI am even more susceptible. I live in Las Vegas, NV. MAC is getting more common here. I wanted to go to Mayo in Scottsdale for treatment but my insurance said I can't get coverage there. I have to go to UCLA. I am always anxious about even getting a cold. Things have gotten much worse for me I guess.
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@windwalker I wasn't. able to post the link for CVID. They think CVID is genetic; I am not able to produce much of my own antibodies because my B cells are not working great, so I get antibodies from blood donations once every 3 weeks. Catching a cold can be dangerous or even turn deadly for people with CVID. Similar to bronchiectasis we are very vulnerable to bacterial infectious of the respiratory and gastrointestinal tract. I wear a mask around groups of people and children. I have been hospitalized many times for the wierdest infections. After awhile these infections cause damage.