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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
I was diagnosed in 1990s by lip biopsy and blood work. My main complaint was dry eye. I had punctal occulusion in late 90s. My mouth is not wholly dry. I’ve been in “remission” (my term) for years. Only using eye drops as needed and increasing moisture in my environment when needed.
I’m now dealing with a skin condition that we are trying to definitively diagnose. Is it lichen schlerosus or morphea? I think my dermatologist is going to consult with my rheumatologist and, hopefully, my gynecologist. Related? We will see
Replies to "I was diagnosed in 1990s by lip biopsy and blood work. My main complaint was dry..."
@gingerbear22 how very lucky for you that the doctors are going to talk with each other! Are they local doctors or university related? I found this information on Morphea scleroderma:
https://www.mayoclinic.org/diseases-conditions/morphea/symptoms-causes/syc-20375283
Do you have other symptoms of Sjögren’s syndrome besides the dry eyes?
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Welcome to connect, I have gotten mouth linchen in my mouth, I usually deal with it thou along with activation of burning mouth syndrome? Which it seems to be triggered by a IV contact dermatitis hypersensitivity response to something I'm allergic to. You might want to consider having allergy testing done. I'm going to be getting referred to Mayo, for Sjogren's, But; my Antibodies test always comes back negative, But definitely have all the other symptoms for years, Did you ever have that problem before getting a positive blood test?