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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@kfassler

Hi, I am glad to find this platform for PMR patients to share their stories. I am a 65 year old active and healthy woman and have had PMR for 2 years now. I managed to get off of prednisone (finally) on Oct. 1, 2021. However, my pain has now returned over the last couple of weeks and I plan to see my doctor tomorrow. I don't want to go back on prednisone, but I sense that it is the only thing that will reduce the pain. I am wondering if anyone has tried Relief Factor and what your experience has been. I have been taking it for about 10 days now at the recommended initial dose and there has been no improvement in my pain level so far. I spoke with a Relief Factor consultant and they have no client testimonials from PMR patients using Relief Factor as of this posting. I am also concerned that my flu shot on Oct. 8th may be what has triggered this relapse. I also had a similar relapse in the spring of this year after my second Moderna jab; and I'm not feeling good about getting a CV-19 booster at this point. I welcome any feedback, comments, suggestions from anyone with similar issues and concerns.

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Replies to "Hi, I am glad to find this platform for PMR patients to share their stories. I..."
John, Volunteer Mentor | @johnbishop | Nov 17, 2021

Hello @kfassler, Welcome to Connect. I'm really sorry to hear your PMR came back. I don't blame you for not wanting to go back on prednisone. None of us like being on prednisone but it is the gold standard when it comes to treating PMR. I have no experience with Relief Factor but unless they have done clinical trials with PMR it would be a no go with me. If you've been taking it for 10 days and there has been no improvement in your pain level that would be a big red flag for me that it's not going to help.

I have had 2 occurrences of PMR. The first lasted 3-1/2 years, the second lasted 1-1/2 years. Both times I started with 20mg prednisone and the pain was gone within a few hours of taking the dose. From your description it sounds like you have only been off of prednisone for about a month which is not long. I think it's really good that you are seeing your doctor or rheumatologist tomorrow to discuss treatment.

What I think helped me the second time around to reduce the time it took me to get off of prednisone was I made some lifestyle changes - If that's something you haven't already considered or are doing, you might want to give it a try. -- Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/

Can you let me know what you find out at your appointment tomorrow?

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dermnurse68 | @dermnurse68 | Nov 18, 2021

Hi
I have had PMR for 5 years, I was finally weaned off prednisone after 4 years, it really never helped me with pain, I am in constant pain daily, I have wanted to try relief factor for a while now, but noticed that it was for minor aches and pain, I wanted something more natural, but I think you answered my question, nothing seems to take the discomfort away,the doctors say that I have fibromyalgia as well and have been given cymbals for my pain but still have pain!
What is your CRP now that you are feeling pain?
If I find something I will let you know.

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