← Return to (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS

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@jammer

OMG this is so scary, I was just told I have MAC . I live in FLorida and my doctor tells me the spores are in the air, soil even the water. Bad news.

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Replies to "OMG this is so scary, I was just told I have MAC . I live in..."

Not a fun Dx but through this group you'll be fear-free! So many treatment options from folks' docs all around the country…include no need to treat if you're symptom-free like me. Please read through the posts, save those that are most relevant for you, and enjoy the feeling that you're not alone, and you'll be OK!

Hi I also live in Florida. I was infected 4 years ago and the town where I live there’s a lot of new construction with homes. My local pulmonologist said I could have been affected by all the open soil and dust flying around. But I know our water here is not the best also. I was so scared at first but life goes on and we try to live the best life that we have. I hope you feel encouraged and feel better. Also I pray that you doctors will work with you so you can make the best decision. This group has helped me so much! I am blessed to have found so many friends with so much knowledge of this disease. Hugs Rita.

@jammer Hello. Welcome to our group. I am sorry to hear about your diagnosis. It can be a scary thing; but the more you learn about it; the less scary it is. Unfortunately, Florida is listed as one of the seven 'hot-spots' for mac in our country. I caught mine in Arizona, another hot-spot. Have you had a chance to read about topics on our Discussion Board? It is located on the Mac and Bronchiectasis group home site.There is a post on how people catch mac and then another one on how to avoid infection or re-infection once you are rid of it. If you need help locating that, please let me know. I can tell you this: after you have worked through the natural steps of denial, anger, acceptance, etc. concerning this disease, it will take an attitude 'agreement'. By that, I mean a good mind-set. For me, it was a decision that I was NOT going to be that sick person. (it could be a healthy form of denial). Getting a great doctor is key to treating this infection. In my opinion and that of @alleycatkate, @auntnanny and @america; we think that Mayo Clinic in Jacksonville is THE place to go for the best treatment. How are you feeling now? Are you having many symptoms?