← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@jammer

OMG this is so scary, I was just told I have MAC . I live in FLorida and my doctor tells me the spores are in the air, soil even the water. Bad news.

Jump to this post


Replies to "OMG this is so scary, I was just told I have MAC . I live in..."

Not a fun Dx but through this group you'll be fear-free! So many treatment options from folks' docs all around the country...include no need to treat if you're symptom-free like me. Please read through the posts, save those that are most relevant for you, and enjoy the feeling that you're not alone, and you'll be OK!

Hi I also live in Florida. I was infected 4 years ago and the town where I live there’s a lot of new construction with homes. My local pulmonologist said I could have been affected by all the open soil and dust flying around. But I know our water here is not the best also. I was so scared at first but life goes on and we try to live the best life that we have. I hope you feel encouraged and feel better. Also I pray that you doctors will work with you so you can make the best decision. This group has helped me so much! I am blessed to have found so many friends with so much knowledge of this disease. Hugs Rita.

@jammer Hello. Welcome to our group. I am sorry to hear about your diagnosis. It can be a scary thing; but the more you learn about it; the less scary it is. Unfortunately, Florida is listed as one of the seven 'hot-spots' for mac in our country. I caught mine in Arizona, another hot-spot. Have you had a chance to read about topics on our Discussion Board? It is located on the Mac and Bronchiectasis group home site.There is a post on how people catch mac and then another one on how to avoid infection or re-infection once you are rid of it. If you need help locating that, please let me know. I can tell you this: after you have worked through the natural steps of denial, anger, acceptance, etc. concerning this disease, it will take an attitude 'agreement'. By that, I mean a good mind-set. For me, it was a decision that I was NOT going to be that sick person. (it could be a healthy form of denial). Getting a great doctor is key to treating this infection. In my opinion and that of @alleycatkate, @auntnanny and @america; we think that Mayo Clinic in Jacksonville is THE place to go for the best treatment. How are you feeling now? Are you having many symptoms?