← Return to (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS

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@onana

@aoise I'm writing to encourage you to consider the treatment if it's being recommended for you. I was adamantly opposed to taking the treatment because my former pulmonologist had frightened me, told me "the treatment is worse than the disease." But then my condition worsened and I developed cavities in my lungs. Now I'm sorry I didn't begin the treatment sooner because it could possibly have reduced the amount of damage caused by the NTM infection. I've been on the treatment (azithromycin, ethambutol, and rifampin) for two months. It's not fun but it's doable and I can see that it's reducing signs of infection. I would encourage you to try to think beyond your current circumstances and make every effort to limit further damage. Best wishes! Olivia in California

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Replies to "@aoise I'm writing to encourage you to consider the treatment if it's being recommended for you...."

@onana Hi there, thanks for your post re: when to treat.

@onana if you were working, are you still able to work full time? Did you start with IV antibiotics?