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DiscussionFeeling quite ill for over a year - not yet been diagnosed.
Brain & Nervous System | Last Active: Mar 31, 2023 | Replies (26)Comment receiving replies
Replies to "We’re you tested for small fiber neuropathy? It may be worth it in your case"
HI, Thanks for your response. since my apparent neuropathy is chest and abdominal/pelvic areas (internal) not sure they can test that? Doc didn't do it, just said "Can't rule it out" but didn't know where he could biopsy in my case, I think. The only thing I see that might help is IVIG (or maybe subcutaneous version) but without proving some specific autoimmune cause (or may some other accepted cause) then I guess it wouldn't get approved by insurance, yet it has caused GI motility dysfunction and IVIG can help organs damaged by small fiber neuropathy to function better. Might be autoimmune cause based on elevated PR3 and polyclonal gammopathy but I think whole panels of antibodies would need to be tested. I know Mayo and Washington Univ publish some of these but can't get a doc to order them as they always say they won't test anything they don't understand (plus there are so many to test for, and insurance may not cover). Appreciate any ideas!