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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 4 days ago | Replies (9325)Comment receiving replies
Hello @heathert my sputum culture is growing MAC again after being free from it for 7 years. I’m having CTscan next week and will see my pulmonologist the following week. He’s thinking of prescribing the 3 antibiotics for 6 months and also put me on the Amikacin liposomal (inhaled). He might also do brochoscopy depending on the results of the CT scan. We haven’t discussed this newly approved medication, he only mentioned it in passing. I’ll have to talk to him more about it because when I read about it, seems like there are some side effects. I am glad you didn’t experienced any serious side effects.
Replies to "Hello @heathert my sputum culture is growing MAC again after being free from it for 7..."
@jasmine321 those nasty MAC bugs keep coming back, 7 years is great without them growing. I was told that liposomal had way less side effects than IV. It will be interesting to see what your dr says.
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@jasmine321 ....I am curious what criteria your pulmonologist uses to start treatment for NTM. Because my local ID doctors would have rushed to put me on the triple antibiotic meds with one positive culture, my ID doc at NJH saw no indication for treatment. I asked her what I should say to local docs. She said the gold standard to consider Rx is 2 positive sputum cultures and CT scan showing bronchiectasis. Tdrell44