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@heathert

Hi @jasmine321 I was on it for a year, great stuff. The only side effects were loss of voice, I used Strepfen lozengers for that.

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Replies to "Hi @jasmine321 I was on it for a year, great stuff. The only side effects were..."

Hello @heathert my sputum culture is growing MAC again after being free from it for 7 years. I’m having CTscan next week and will see my pulmonologist the following week. He’s thinking of prescribing the 3 antibiotics for 6 months and also put me on the Amikacin liposomal (inhaled). He might also do brochoscopy depending on the results of the CT scan. We haven’t discussed this newly approved medication, he only mentioned it in passing. I’ll have to talk to him more about it because when I read about it, seems like there are some side effects. I am glad you didn’t experienced any serious side effects.

@heathert....thank you for sharing your experience with Arikayce. The Stephen lozengeges Box says don’t use more than 3 days. Also wondering if they conflict with the big 3? When you say loss of voice do you mean you were hoarse or do you mean you could not speak? And for how long?