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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@heathert

@jasmine321 Yes I was in the trial for Amakacin inhaled and I think it is called Arikayce. I think it did a good job while I was on it, I had a clear sputums finally.So glad it is approved. It was easy to take.

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Replies to "@jasmine321 Yes I was in the trial for Amakacin inhaled and I think it is called..."
jasmine321 | @jasmine321 | Nov 10, 2018

Thank you for the reply Heather. How long were you on it? Any side effects?

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hydrang3a | @hydrang3a | Nov 10, 2018

@heathert.....How long were you on Arikayce and how long were you on Amikacin before that? Was it hard to get used to all that is involved including cleaning the apparatus daily? I’m starting Arikayce on Monday after initially receiving Amikacin through an IV and then through nebulizing. An instructor is spending two hours on Monday teaching me how to use the new drug. Very interested in hearing what you thought of it, thanks!

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