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Nights sweats and Shingrix vaccine
Autoimmune Diseases | Last Active: Nov 20 1:51pm | Replies (52)Comment receiving replies
☺️ I have a new appreciation for when infants are so cranky and cry after their vaccinations. Yes, after a BMT, any immunity we have has been removed with the chemo that cleans out our marrow. So yup, we get to start over with childhood, adolescent and adult vaccinations. At 67 I can honestly say I’m an adult now! Haha the last of the vaccines were 4 weeks ago!
Thank you for your sweet reply. I’m back to 100% after 2.4 years. I am a walking miracle and appreciate every moment of getting this second chance at life. I’ve learned a great deal from this experience. That it’s important we never compare what we’ve gone through with what someone else is experiencing.
You’re going through your own personal battle with having Sjogren’s Syndrome. I can’t imagine the level of pain and discomfort you’re going through on a daily basis. So you have my admiration for staying so positive and upbeat while you’re finding answers and hopefully some relief. Honestly, I’ve said this before, but we really just don’t know how strong we can be until it’s the only option, right? We just can’t ever give up.
You mentioned having acupuncture treatments for the pain in your neck and head. Did this help you? Has this helped with the neuropathy in your felt? Acupuncture has helped me immeasurably over the years for chronic neck pain. I couldn’t have it for the past 2.5 years but finally have clearance to start again. I can’t wait!
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So a bit more info about the acupuncture treatments. I am very impressed by the acupuncturist I have been seeing. She studied for 9 years to get her DAOM (doctor of oriental and assign medicine license) and worked as a massage therapist while going to school.
I was having sinus problems (headaches for 2 months) on top of my neck pain (now 6 months), and willing to try anything to help with the pain. I signed up for a 12 week course of 2-3 sessions a week. The cost was $3200. I am at about 5 weeks in and I have had a gradual improvement in my symptoms. I have had to break up the sessions due to travel, but she accommodated my schedule and when I am home I am there until the 12 weeks are up.
Every time I visit, I tell her my main pain issues, and she asks me how I felt after the last session. The first few sessions I was there an hour and a half and she inserted needles on one side, then took them out and I turned over and she did the other side of my body.
Each time she has put needles in different areas. First she focused on the sinus issues. Much better now in that respect. If she has me face down for needles along my spine, she always put quick needles in my face to alleviate sinus pressure before I leave.
I was having head pain radiating up to my skull from my neck (from bone spurs and nerve impingements in my cervical spine). I am having less pain and fewer headaches, so I truly think it’s helping. She tells me it’s a building process.
It was a big investment so I’m hoping it is worth the cost. It’s fascinating the various feelings generated by the needles. The whole process is mind-boggling.
Anything that helps me feel better is worth a try. I imagine she will want me to co to us to visit her to “maintain” the benefits I’ve achieved, I will keep you posted.
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Your reply made me cry! It is a daily struggle. The good days are to be appreciated. I have many good days.
I will spend more time replying about the acupuncture etc later. So far I think it’s helping!