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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@becsbuddy

@mskatrina12 I’m so glad @johnbishop was able to give you some good information. I don’t have erosive oral lichen planus but i do have another autoimmune disease that affects my brain. I take prednisone and Mycophenolate and I’m 73 yo. I know that they are immunosuppressants so i take care to protect myself. I always wear a mask when I’m out and I’m extra careful on airplanes (I’ve been to see my 98yo mother twice since covid started). Was your mother vaccinated? Talk to the staff at the care facility to find out the vaccination rates of the staff and patients. Also tell them that you are on these drugs so need to be very careful. Is your town and/or county controlling the pandemic? You need to quietly sit down and consider everything. Yes, the medications for you are very important, just like the vaccines are. Then you can wear your mask and safely visit your mom.
I was also encourage to get the booster shot and had no reactions. I know that you’re nervous as heck because i am, too. I’m able to talk with some friends and others, not. I’m sorry you don’t have friends who will listen .
@mskatrina12 , i know you can do this. It’s hard. I’m here whenever you want to talk.
P.S. as i was typing this, my phone timer went off telling me it was time to take Mycophenolate! Yes, there are side effects, but…..
Would getting a second opinion help you to feel better? Is there a university hospital that you could reach out to?

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Replies to "@mskatrina12 I’m so glad @johnbishop was able to give you some good information. I don’t have..."

@mskatrina12 Hello. I was diagnosed with OLP a year ago and 3 or 4 doctors have tried several medications, with no success as yet. Currently, I'm in the care of a dermatologist who also has had me on several prescriptions with no success. He intends to do a biopsy soon, which I'm dreading, but am welcoming.
I also have Giant Cell Arteritis and have been on high doses of immunosuppressants including Prednisone and now Actemra injections in the care of my rheumatologist. On the advice and approval of my rheumatologist, I've had two Moderna vaccines and a booster, in spite of these iimmunosuppressants. I had no side effects from the booster shot, aside from the usual sore arm. My rheumatologist said it was much more important for me to have the three vaccines than to risk getting Covid. I trust my care and her opinions implicitly. (I have several autoimmune diseases, including GCA, OLP, IBS, as well as osteoarthritis, etc., etc.!) Hope this info might help allay your fears regarding getting the booster shot, Katrina. Warm regards, Laurie