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DiscussionFeeling quite ill for over a year - not yet been diagnosed.
Brain & Nervous System | Last Active: Mar 31, 2023 | Replies (26)Comment receiving replies
Thanks for keeping up with my post and checking in. I do appreciate the support. I have posted on other forums where hardly anyone ever responds.
I wanted to mention that the vitamins I take are are all Shaklee branded and they two vitamin B's per day, one vitamin C, one vitamin D3, and one Magnesium. I also sometimes take Tumeric but this sometimes causes me to have anxiety attacks with doom and gloom feelings. Not sure why.
I changed my eating to really healthy stuff like frozen spinach, fish, beans, fruits, vegetables, and cereal. I still have persisting symptoms.
Here is what my day is like:
I wake up in the morning with soaking clothes and sheets, so I have to change my clothes and sheets again. I change them every morning due to consistent night/sleep sweats.
I try to walk around when I get up and feel heavy malaise, disorientation, and a little bit of dizziness. Nothing feels real, I feel like I am in a dream or am about to leave Earth. My consciousness has been reduced by a sizable margin. It feels kind of like a flu but not quite like it. Certainly different from anything I have ever experience before. I never have any fever with any of this, my temp is always 97 - 99 F. No usual symptoms of flu like coughing, chest congestion, runny nose, etc. There is much more sense of malaise and sense of doom with this than the flu, and also I did not have these weird nerve aches going off throughout my body during the flu. This is certainly a worse experience than any flu I have ever had and this doesn't go away, the flu just lasts a week or so.
I look outside and when I see nature and hear land animals and birds it fills me with anxiety and a sense of gloom/death. I think of all the death that occurs in nature and how grim this planet/existence really is. My mind ponders what this life was all about and why was I ever here to start with. Why is life so short and dreary with so much suffering and disease? I then have to close my blinds and lay down due to malaise/panic attack feelings. My brain, moods, and thought processes have become sick.
Today like most every other day in bed I felt nerves and aches going off in different parts of my body. Sometimes it is in my legs, other times it is in my face, I feel pain in my chest and feel a slow/heavy heart beat periodically then it goes back to normal. I have pain in my knee joints and this makes me not want to walk around much.
I now sleep 15 hours a day and am largely immobile.
My stool is pale and my eyes are partly yellow.
I can't breathe good and feel shortness of breath through part of the day. My chest feels heavy and tight, especially after I ate today.
I am still having dreamy thoughts that don't make sense, they are jumbled jibberish thoughts.
Muscle twitching/fasculations are all over body and pretty much constant. My eyelid in my right eye is always twitching throughout the day.
As I have posted, I have had extensive testing done and everything comes back normal except for fatty liver. Though my heptalogist thinks it is odd I have a fatty liver because I am a skinny guy who does not have diabetes or other ailments that usually occur with fatty liver.
I have gone to ERs dozens of times and my blood tests are always normal, they never admit me to hospital.
I am having a fibroscan of my liver next week along with adrenal blood test.
I am not sure what to do. This has been going on since May 2020, so over 1 and a half years, and started while taking the prescription drug Adderall. Before that I had none of these symptoms and loved going outside and being active and felt jovial with no sign of sickness at all. I felt completely healthy and did not worry about my body or health. I didn't keep up with anything medical related because I never had to think about it, my body always worked normally. So with what I have been going though, my perception of the world, personality, and how I feel has completely changed into something I can't recognize.
My latest weird symptom is little red blood spots forming all over my body. I looked online and see they are called pettichia and purpura. Never had these all over my body before until just past few weeks. Why are little red blood dots forming all over my body?
I sit around wondering if I am dying of something that doctors can't seem to diagnose.
Replies to "Thanks for keeping up with my post and checking in. I do appreciate the support. I..."
Hello, I have some similar symptoms which started almost 3 years ago and I am in constant debilitating burning pain from chest to pelvic area with GI motility issues and now sometimes head and other areas have nerve "sensations". No help from any docs and neither Jacksonville nor Minnesota Mayo could get me in for diagnostic workup. After lots of studying, I believe these things start as infection or possibly a central nervous system herpes virus reactivation which no doctor seems to understand, test for or address in any way. This can include Epstein Barr, HSV1 and 2, CMV and other viruses most of us carry but are not familiar with. For central nervous system infections a spinal tap may find it. Of course other pathogen types could be involved. Such infections may then possibly cause autoimmune conditions and the red dots (I also get) can be indicative of vasculitis, among other possibilities. I asked for ANCA panel test came up positive for proteinase 3 but still no diagnoses. Also ask for immune globulin, mast cell activation (allergist/immunologist)tests and neuromuscular antibody panel (published by Washington Univ) some of the results of any of these could be an indicator to at least point you in a direction though I myself am getting nowhere with doctors. Hope to keep in touch and keep each other posted