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At a loss, multiple consultations still no answer...any idea?

Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)
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@becsbuddy

@joannemm30809 i just saw this article in the Mayo Clinic blog section. I thought of you right away because it talks about dysautonomia. I’d the link doesn’t work, look on the right side of the Connect home page where all the current discussions are listed.

EDS and POTS | Mayo Clinic Connect https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/eds-and-pots/
Have you found any doctors in south Florida who can help?

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Replies to "@joannemm30809 i just saw this article in the Mayo Clinic blog section. I thought of you..."
joannemm34293 | @joannemm30809 | Nov 15, 2021

I'm in process of moving from Lakeland Florida to Venice FL and will be starting over trying to find some knowledgeable doctors to help me. Tampa is not too far from Venice but my neurologist there has not been able to diagnose me and refuses to do a Small Nerve Fiber test, he stated he does not do that type test. So I guess I'll be looking for another neurologist. I'll need to also find a good cardiology near Venice too.

I had a Tilt table test done one year ago but it was negative for POTS but I have all the other strange symptoms of ANS malfunction YET I do not really fit into the 15 different categories of Dysautonomia.

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