Hello @gilliland1102 I am Scott and I was my wife's caregiver during her 14+ year war with brain cancer. I am sorry to read about your boyfriend's health troubles. My wife's brain tumor showed up unannounced. Soon she was plagued by auditory, visual, and olfactory hallucinations. She got her first diagnosis at one hospital, didn't care for the neuro doc's style, and went for her second opinion at Mayo.
After her resection (she stayed with her docs at Mayo), she too suffered from seizures until we were able to get the right medication and its dosage for her. We did have to adjust this over time as her condition changed.
Her condition was a constant rollercoaster. Ups, downs, and changes galore. It was not a smooth curve of progression.
I know every patient, their disease, journey, and caregiving are different, but I am very willing to help with any experiences I can share and what we learned and had to deal with.
Please feel free to ask me anything that's on your mind.
Strength, Courage, & Peace
It’s just so hard bc every dynamic of our relationship has changed. Somedays he’s grouchy, others fatigued, some he doesn’t have much to say, some he’s sad, some he wants to watch cartoons. I don’t know how to deal with any of this.