← Return to Introductions: Are you caring for someone with dementia?

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@IndianaScott

Hi, @lindakbe I agree with you. Caregiving, or caring for someone, often leaves us walking blindfolded. I have never met anyone who was ever prepared to be a caregiver. We get no training, no manual, no job description, just finding ourselves in the water and trying our best to swim.

One of the biggest challenges to me was realizing much of what I witnessed in my wife was not her, but her disease acting, speaking, reacting, etc. to her world. I always said in my life I was married to one woman, but two people. My wife was in charge of the first person, her disease was in charge of the second. I doubt most of the years, my wife ever realized that her world was entirely different than before. That said, except for a tiny few times, my wife never realized her changes, so your friend might not either. I had to watch for those times/things that were dangerous and take the reins to avoid harm or catastrophe. The toughest might have been when I had to take the car keys away. With my MIL she never realized she thought the UPS man was her husband or that the sidewalk was not the street. Others had to gently guide her from those mistakes, but she was never aware of the 'mistakes' she was making. Her disease had robbed her of that ability.

It is hard to navigate and differentiate when the disease is in control.

Might your friend's doctor be able to help her with this during a 'regular' physical?

Strength, Courage, & Peace

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Replies to "Hi, @lindakbe I agree with you. Caregiving, or caring for someone, often leaves us walking blindfolded...."

Remembering your words that it is the disease (if that is what is happening with her) causing the changes and her actions that are not really her choice has helped me feel calmer around her. If you don't mind me asking, did your wife or MIL ever get angrily anxious and start going on so much that you had to set a boundary? It doesn't seem to help her to let her keep getting more and more upset at me, and it definitely hurts me. It just seems that if it is all from a disease I should not set a boundary at all because she can't help it? Oh, this is hard. I plan on sharing this situation with my doctor and seek her advice.
Thank you for sharing what must be very difficult memories.