← Return to Undiagnosed Autoimmune with back pain, spasms, and stiffness

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@athenalee

I’m so glad Sjogren’s Advocate has been a revelation for you. It is the most helpful and supportive website for those of us with Sjogren’s. It was started by a doctor who has Sjogren’s, as she was frustrated by the lack of recognition by rheumatologists of the systemic symptoms that Sjogren’s frequently causes. I have pretty much your same symptoms. Fortunately my neurologist diagnosed me and has been helpful.

As @jetsetter recommends, I hope you can find a rheumatologist who will help you! Sjogren’s Advocate has guidance documents for rheumatologists, perhaps take these to your rheumatologist or primary and ask for a referral to a different doctor!

Be strong and remember it’s your body! You know your symptoms!

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Replies to "I’m so glad Sjogren’s Advocate has been a revelation for you. It is the most helpful..."

Will do. I am on a Medicare advantage plan. Inexpensive but for people with less health issues
I will explore other plans and definitely speak with my PCP which is actually the one who was the first one in running the tests and referred me to rheumatologist stating i have inflammatory markers for autoimmune
I will explore Sjögren Advocate and educate myself
A huge thank you to all and special thanks to jetsetter and athenale

Where is this website> Sjogren Advocate