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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Diagnosed in 2010. On meds for over 2 yrs. Sputum still shows MAC an have continuous cough an Hugh amts. Of mucus that I try hard to keep coughing up. Also get SOB an use oxygen. I take 250 mg. Zithromycin daily. Also on Gammagard IV to raise immunity.as.have pneumonia 4 times. I am. 82 an guess lucky lived this.long.Some days really tough. Hope they find a cure for this.Never smoked but exposed to secondary smoke for 18 yes.
Replies to "Diagnosed in 2010. On meds for over 2 yrs. Sputum still shows MAC an have continuous..."
@beegee Hi there. It is nice hearing from you. I am sorry that you are having such a tough time of it right now. I know that all of that coughing and congestion is miserable. I went through years of it myself. If you don't mind my asking; do you know what kind of mac you have? When was your last sputem test?
@beegee..I want you to know there is hope for relief from the constant coughing. Many members will have suggestions, but I found relief by sleeping upright so acid did not enter my lungs. A low acid diet, postural drainage, and acupuncture to calm my coughing nerves have helped me get off oxygen and keep the damage isolated to one lobe. Do you have bronchiectisis and do you know where your damage is located?
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Hi @beegee,
You’ve come to the right place to talk, share and get support from members who understand what you are going through – welcome. I'm certain that @windwalker @boomerexpert and others in this incredible group will join in with their insights and experiences.